September 9, 2010, Thursday, 251

Cystic Fibrosis Updates

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Contents

[edit] Service CF Style Downloads

CF Ball Tournament Aug 28, 2010
2nd Annual Cruise For the Cure Cruse, January 16-23, 2011

The Three Hour Tour to Finding A Cure fundraising idea is fantastic. Please take the time to review, forward to your membership and hopefully take on this idea!
Planning Package
Pledge Form
Time Log Sheet




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Donate Your Scrap Car to CF I have used this and the VERY next day the tow truck was by to collect! This is fantastic.


[edit] Service Director Amanda Loitsch 2010 - 2011

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NEWS UPDATE For Organ Donation in Ontario!!

An open letter from Tanis Hargrave, CF Mother
An organ donation blitz begins. Tanis Hargrave, who operates a catering and event planning company from Tuscany Event Centre is continuing her campaign to educate people about organ donation. Her son, Dan, just underwent his second double-lung transplant. YorkRegion.com Staff Photo/Mike Barrett
An organ donation blitz begins. Tanis Hargrave, who operates a catering and event planning company from Tuscany Event Centre is continuing her campaign to educate people about organ donation. Her son, Dan, just underwent his second double-lung transplant. YorkRegion.com Staff Photo/Mike Barrett

Dan and I have been helping to spread awareness around signing your organ donor cards. If you have a paper driver's license donor card it is now considered private and unofficial. The new system involves registering your wishes on your health card. This can be done by going to The Trillium Gift of Life Web site and downloading the new Gift Of Life Consent Form. Fill it out and drop it off at your closest Service Ontario location or mail it to the Kingston address supplied. Dan is alive today because he received the most amazing gift ever...The Gift of Life!
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The below article is copied from YorkRegion.com
By Teresa Latchford
Apr 26, 2010 - 8:29 AM

A mother’s quest to educate you on organ donation is paying off, especially during national organ donation week, which wraps up today.

In January, York Region Media Group featured the story of Tanis Hargrave and her son, Dan, who lives with cystic fibrosis, a genetic, multi-organ disease affecting the lungs and digestive system. In 2002, his only hope for survival was a double-lung transplant and, at the critical moment, a donor supplied him with the organs he so badly needed. The catch was the lungs were to big for the body of the then-teenaged boy and had to be trimmed to fit. When he turned 24, his body began to reject the transplant and his health took a turn for the worst last November.

Again Mr. Hargrave was placed on the transplant list awaiting a match. He was matched and had his second transplant last month, Ms Hargrave said, adding he is “doing very well”. This time around, the donated lungs fit Mr. Hargrave’s body and the surgery that was expected to take up to 15 hours, because of the difficulties associated with second transplant procedures, only took 7-1/2 to complete. “After the first transplant, he was in the hospital for two months,” Ms Hargrave said. “This time, he was out in 28 days.” He continues to rebuild his muscles and work out his lungs at Toronto General Hospital three times a week, but is feeling great, she added. These kinds of miracles — the gift of life — is what motivates Ms Hargrave to continue stressing the importance of registering as an organ donor. “There is so much need for organ donations, but, the fact is, most aren’t aware of how to become an organ donor,” she said.

She is determined to educate the public about the facts by speaking to municipalities and setting up booths at public events, such as the one displaying information at Aurora Town Hall. Others have joined in to open discussions about organ donations, including Newmarket-Aurora MPP Frank Klees, who has put forward a resolution at Queen’s Park calling on the province to create and organ registration link on the Service Ontario website to allow Ontarians to register online using their OHIP numbers. “I have met so many people after your article who pull out their organ donor card to show me,” she said. “But because of the changes that have been made, those are no longer valid.” Many are not aware that organ donor registration is no longer done when a person renews a driver’s licence.

Instead, the province has transferred the registration to the Ontario health card so it can be swiped and medical professionals can see right away if the person is a donor, she explained. “If I can inspire one person, it’s all worth it,” she said. A donor card can be downloaded at giftoflife.on.ca and, when you renew your Ontario health card, you can have your wishes stored in the Ontario Ministry of Health and Long Term Care database.


While Kin Canada does remain politalically neutral you can download a Petition to request online registration for Organ donation as well as you may read the Organ Donor Registry Release from MPP Frank Kleese


[edit] Kin CF and Service Reps 2009-2010

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