Cystic Fibrosis Updates

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Kayak Quest for Breath

Greetings all......it has arrived! Please get this out to as many people as possible....clubs, partners, business contacts, facebook pages, etc, etc. I have a formal request letter too that I will send if you request it. I aslo have a pledge sheet for those of you wishing to collect the much needed loonies and toonies by hand......your's for the asking. Check out the site, read the blog, give me your feedback. Most importantly, spread the word and get those donations coming in.

Send everyone to: www.kayakquestforbreath.com


I still need help with the following.....
route logistics support boat/team
nutrition planning and packing YIKES.....
and lots more.

My mind is still on the website.........

Erin

Erin and Pete




2011-2012 Service Plan

The service plan for this year is three pronged. As always, we want to encourage 100% participation by all of the clubs in the district. Let’s show the rest of Canada why 8 is the district to beat!

1. Service Projects–  What we do best!

we encourage you to continue the fabulous work you commit to meeting your community’s greatest needs. Remember, the goal of a service project is to meet a specific need. It is not a fundraiser, as such, feel free to put away the calculators and do what we do best….lend a hand, flip burgers, wrap presents, serve meals at a soup kitchen………In addition to all the great things we are already doing National Service Director Robin Stanton has challenged us to a “90 for 90 Challenge”
Action Plan: all clubs find/create an additional 90 minute service project for February 18 - 19th weekend as a way to celebrate our Association's anniversary date.

2. National ProjectsPortraits of Honour

The Portraits of Honour Mural has now come to rest in its original studio space, where Artist Dave Sopha will work toward completing this beautiful tribute by adding MCpl Byron Greff, Mr. Glyn Berry and Ms. Michelle Lang. Along with all fellow Canadians, it is hoped that no further soldiers, sailors or aircrew will need to be added to the Mural.


Details regarding future plans for the Portraits of Honour Mural will be released once available.

Travelling from coast to coast, the Portraits of Honour National Tour has made a significant impact on the lives of Canadians, sparking a wave of patriotism, emotion and support for our Canadian Forces.

Donations made to Portraits of Honour will continue to support the Military Families Fund and select Military Family Resource Centres across Canada.


Check out the POH webpage for more details.  http://www.portraitsofhonour.ca/

3. National PartnerCystic Fibrosis Canada
Acknowledgement, Thanks and Support for existing fundraising efforts. In 2009-10 D8 donated $211,951. Our total donation last year (2010-11) to Cystic Fibrosis Canada was $237,803. THANK YOU DISTRICT 8. Our goal is to beat that amount in order to help the rest of Kin Canada raise $1000000 this year!
Action Plan:
 Encouragement to create one new small fundraiser with the 2011-2012 “Save Your Silver” Theme. We celebrate “silver” in recognition of the 47 years Kin has been a partner in the battle to find a cure or control for Cystic Fibrosis. Your Zone Service Rep will be to visit you shortly to help you with ideas and share our vision of the theme.
 District Fundraising Campaign ~ “Kayak Quest for Breath”
In keeping with the celebration of 47, Service Director Erin will paddle 470km to District Convention. This will take 10 days of paddling for 10-12 hours a day, endurance, perseverance, and courage ~ the attributes each Cystic Fibrosis patient faces each day just to breathe!! Our district will have the extreme goal of raising $47K in this extreme district fundraiser by encouraging corporate national, regional, and local contributions; online blog which we hope will be tied into Cystic Fibrosis Canada’s web portal www.drowningontheinside.ca with pay pall pledge capabilities; good old fashioned donation solicitation; and special community fundraisers. We know you will support us in this cause. Please keep your eyes peeled for web presence on facebook soon.


It is with eager anticipation we look forward to hearing about all the wonderful things each club and each member does to uphold our great tradition of Service. I thank you in advance for your participation in the 2011-12 District 8 Service Plan. Forward Together, we can achieve our Goals.
Service Directors Andy Huges and Erin Thomson
'=

Service Director Contact Information

District Service Director - Andy Hughes

  • Contact info: Email Andy Hughes or phone 705 286 6668.
    DG Andy 2009-10.JPG
  • Has been in kin since 2003 and has maintained a 100% attendance level with the Minden kin club.
  • Has served as Director/registrar at the club level.
  • Has participated in Public speaking at both Zone and District levels.
  • Has served as Vice Deputy governor/ CF service rep twice at zone level and has served as Deputy governor for 2 terms.
  • Is a three time Ice Race Champion at the CASC ice races in Minden.
  • Is self employed as a wood finisher.
  • Is Married to Kinette and Deputy Governor Zone C Heather Peckham-Hughes.
  • Has one daughter Emma, 20 yrs old.

District Service Director Erin Thomson

Image:Erin_Thomson_June_2010.jpg

  • Contact Info: email chirokid@ntl.sympatico.ca or cell 705.363.5085.
  • Dr. Erin Thomson has been an official member of Kin Canada for 8 years; she has had a Heart of Kin her whole life.
  • Daughter of the late Kinette Carole and retired Kinsmen Fred Thomson and niece of Life Members Heather and Paul Laverdiere, she has truly grown up in the family of Kin.
  • After completing her education as a Doctor of Chiropractic she returned home to Northern Ontario. Erin balances two busy practices in Iroquois Falls and South Porcupine with volunteer activism with the Kinette Club of Timmins. The self-proclaimed ‘Vice-President for Life’ has actually held many positions at the club and district level including Zone A CF& Service Rep., as well as Deputy Governor.
  • Erin is looking forward to the opportunity to serve the District as Service Director 
  • by incorporating the values passed forward from our rich Kin heritage with fresh ideas inspired by contemporary themes.




Put putt raises $20,000 for cystic fibrosis

Kinsmen district president Bill Brown; Parry Sound Mayor Jamie McGarvey; Cystic Fibrosis Canada executive director Jackie Bloom and Kinsmen Club president Paul Hannon start the 20th annual pub putt with a donation presentation.


By Sarah Bissonette
Apr 20, 2011
Reproduced from www.cottagecountrynow.ca

PARRY SOUND
It was raining, but that didn’t dampen pub putters’ drive to fundraise. The 20th annual Kinsmen Pub Putt for Cystic Fibrosis was held Saturday with a record turnout of 70 golfers raising $20,000.

This was Richard Land’s first year. “My buddy said we should come do it for a good time, so I decided I might as well,” he said. “It’s mini-golf, I like mini-golf.” Not far from where Land stood was Lori Campbell, who was ready to putt for the third consecutive year. “My dad is a Kinsmen and we fundraised at my store, too,” she said. The six-member family team raised $250. Andrew Tuck raised $2,100 to lead the way.

Putters went around to eight businesses, both in town and as far away as Bass Lake, to help find a cure for cystic fibrosis. All funds go to Cystic Fibrosis Canada.






Service CF Style Downloads

The Three Hour Tour to Finding A Cure fundraising idea is fantastic. Please take the time to review, forward to your membership and hopefully take on this idea!
Planning Package
Pledge Form
Time Log Sheet



Image:Updated_CCFF_Logo_Nov_2010.jpg

Donate Your Scrap Car to CF I have used this and the VERY next day the tow truck was by to collect! This is fantastic.



NEWS UPDATE For Organ Donation in Ontario!!

An open letter from Tanis Hargrave, CF Mother
An organ donation blitz begins. Tanis Hargrave, who operates a catering and event planning company from Tuscany Event Centre is continuing her campaign to educate people about organ donation. Her son, Dan, just underwent his second double-lung transplant. YorkRegion.com Staff Photo/Mike Barrett

Dan and I have been helping to spread awareness around signing your organ donor cards. If you have a paper driver's license donor card it is now considered private and unofficial. The new system involves registering your wishes on your health card. This can be done by going to The Trillium Gift of Life Web site and downloading the new Gift Of Life Consent Form. Fill it out and drop it off at your closest Service Ontario location or mail it to the Kingston address supplied. Dan is alive today because he received the most amazing gift ever...The Gift of Life!
Gift of Life Logo.JPG


The below article is copied from YorkRegion.com
By Teresa Latchford
Apr 26, 2010 - 8:29 AM

A mother’s quest to educate you on organ donation is paying off, especially during national organ donation week, which wraps up today.

In January, York Region Media Group featured the story of Tanis Hargrave and her son, Dan, who lives with cystic fibrosis, a genetic, multi-organ disease affecting the lungs and digestive system. In 2002, his only hope for survival was a double-lung transplant and, at the critical moment, a donor supplied him with the organs he so badly needed. The catch was the lungs were to big for the body of the then-teenaged boy and had to be trimmed to fit. When he turned 24, his body began to reject the transplant and his health took a turn for the worst last November.

Again Mr. Hargrave was placed on the transplant list awaiting a match. He was matched and had his second transplant last month, Ms Hargrave said, adding he is “doing very well”. This time around, the donated lungs fit Mr. Hargrave’s body and the surgery that was expected to take up to 15 hours, because of the difficulties associated with second transplant procedures, only took 7-1/2 to complete. “After the first transplant, he was in the hospital for two months,” Ms Hargrave said. “This time, he was out in 28 days.” He continues to rebuild his muscles and work out his lungs at Toronto General Hospital three times a week, but is feeling great, she added. These kinds of miracles — the gift of life — is what motivates Ms Hargrave to continue stressing the importance of registering as an organ donor. “There is so much need for organ donations, but, the fact is, most aren’t aware of how to become an organ donor,” she said.

She is determined to educate the public about the facts by speaking to municipalities and setting up booths at public events, such as the one displaying information at Aurora Town Hall. Others have joined in to open discussions about organ donations, including Newmarket-Aurora MPP Frank Klees, who has put forward a resolution at Queen’s Park calling on the province to create and organ registration link on the Service Ontario website to allow Ontarians to register online using their OHIP numbers. “I have met so many people after your article who pull out their organ donor card to show me,” she said. “But because of the changes that have been made, those are no longer valid.” Many are not aware that organ donor registration is no longer done when a person renews a driver’s licence.

Instead, the province has transferred the registration to the Ontario health card so it can be swiped and medical professionals can see right away if the person is a donor, she explained. “If I can inspire one person, it’s all worth it,” she said. A donor card can be downloaded at giftoflife.on.ca and, when you renew your Ontario health card, you can have your wishes stored in the Ontario Ministry of Health and Long Term Care database.


While Kin Canada does remain politalically neutral you can download a Petition to request online registration for Organ donation as well as you may read the Organ Donor Registry Release from MPP Frank Kleese


Kin CF and Service Reps 2009-2010

Image:2009-10_Kin-CCFF_Liaison.jpg

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